Ok.. so in the last blog I told you that I was just told that I DO have Fibromyalgia and that the Dr. gave me a prescription and I thought everything would go back to normal for me.. but I was Wrong..
I started to take the meds the Dr gave to me. I just got very weak and tired. So I slept. And Slept.. And Slept... for about 3 months straight. That was all I did was sleep.. I would wake up and eat something, go to the bathroom and go back to bed and sleep til I needed to eat or go to the bathroom again. I could NOT stay awake..
So, we went back to this so called Specialist.. He wanted to RAISE my meds!! We said, NO.. She can NOT stay awake as it is.. So he gave me a different medication to try..
Well, On this medication I could stay awake a bit more but I was still in a lot of pain and couldn't walk very far at all without holding onto something.
My life was so sad and full of pain. Needless to say I had stopped working.. Who can drive and work 8 hrs when they can't stay awake at all??
I was becoming very depressed and sad and was in so much pain all the time I didn't know how to cope.
So, we went back to this Dr. again.. In the mean time I was gaining weight and I really didn't notice because of the pain and depression.. This Dr. asked me how I was.. I told him I am in so much pain I can't stand it.. He said to me, well I am really sick of hearing how much pain everyone is in all the time.. I couldn't say a word!! I mean WTF?? I don't really remember much more about the visit.. but as soon as I got out of there I went straight to my Family Dr. and told him what this Dr. said to me and told him to find me a new Dr. because I Would NEVER go back to that one..
Well, luckily or unlucky for me there was one more Fibromyalgia Dr. in Des Moines.. Yea, only ONE more..
So we set up an app. with her for the next week..
When I got to that app. I was hopeful. I thought there is no way she can be as bad as the other Dr.
She was really nice to me and very understanding. She said most People come to her after seeing another Dr. and they are all usually sad and overweight. I was like what?? That is when I started to realize that I had gained weight. I was in such a fog for so long I had no clue.
Oh and did I mention it took them a YEAR to diagnose me in the first place? That is how many tests they ran on me.
She said the meds the other Dr usually puts patients on makes them gain weight really fast.. I thought Wonderful.. it's not like I was a skinny person to start with.. Not fat but build like a woman for sure.. Now I had to worry about my weight on top of everything else. :(
Anyway, Good thing about her is she put me on different meds.. which stopped most of the weight gain.. Bad thing about her is she doesn't believe in pain pills.. What??? Obviously SHE has never been In major pain day after day after day..
So, the meds she gave me helped some.. But not nearly enough. I could not sit, stand or lay for very long before my muscles would freeze up and start to cramp. So, no rest.. and no rest means more pain.. more pain means less rest.. and the cycle goes on..
Oh yea, and before I got to this last Dr. I went to a stomach specialist.. Of course they weighed me when I come in.. I thought that isn't good.. I had gained about 50 lbs.. OMG!!! Well, I had to come back to this same Dr. the next week.. they weighed me again on the same scale and I had gained 25 lbs in ONE WEEK!!!!!!!!! NO WAY!!! I thought that HAS to be wrong!!
But as it turned out and found out from the NEW Dr. that is what those other meds did to people.. I mean between NOT being able to move without severe pain (which mean NO Exercise at all) and these meds, I was gaining weight faster then should be humanly possible..
So by the time I got to this other Dr. I was 80 lbs overweight.. That is like almost a whole other person.. So, you can imagine how much that helped with the pain.. made it worse of course..
But I did find out that I had Irritable Bowel Syndrome.. Guess lots of people with Fibro get it.. Also found out that lots of people with Fibro also gain lots of weight... and get insomnia.. and so I had a sleep test done on me to find out if they could figure out why I don't sleep (besides because of the pain)
Well, they found out that I stop breathing 56 times an hour.. so that is almost once a minute.. Unreal.. Like does the bad news ever STOP coming??
Needless to say I was severely depressed by this time.. My whole world had been turned upside down. I had become a whole other person physically and mentally.. I had no clue how to fix any of it either..
So.. I think I will leave this here and start again on the next blog.. It's hard to go thru all this again.. It seemed like a lifetime when I was actually going thru it.. ..
So until next time.. :) have a great Day!!
Aunita
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